Parents don't find out about baby's rare condition until birth

Parents don't find out about baby's rare condition until birth

Imagine the challenge of knowing your baby will be born with a significant birth defect. Many are identified weeks or months in advance, but one local family didn't find out until birth. 

"I guess God didn't want us to know... so we didn't know," Lena Wieler said.

She was ready to give birth to a healthy baby.
 
"We had a sonogram, an ultra sound done at thirty-five weeks... everything looked good, we didn't see no defect. We were in for a surprise," Wieler said.
 
It wasn't until Jocelynn was born, her parents and doctors found out she has gastroschisis.
 
"Her intestines were born on the outside of her body. I had never ever heard of that before, i didn't know that was a thing," Wieler said.
 
With most gastroschisis cases doctors can put the organs back in the body within a day or so, but Jocelynn's took about a week.

"So Jocelynn defect was rather large...which was her small and large intestines, her stomach, most of her liver and one ovary. They put it all in a little baggie and they hung it above her and then slowly all the intestines go back in," Wieler said.
 
Just when she felt like hope was being lost...  Wieler met their operating room nurse, Priscilla Martinez.
 
"I could tell she was nervous and I said oh well did you know I was born that way?" Martinez said.
 
"And I was like really? And i just hugged her and I cried and cried and she let me bawl on her. She was so sweet and she told me she was completely fine and that just gave me so much hope," Wieler said.
 
Along with that connection, it was faith that guided the family through this unexpected obstacle.
 
"Lots and lots of prayer. That's what I love about covenant. it's a faith based hospital and they do prayers. They have their own personal people that walk around praying for everyone and Angelina is my favorite. I don't know what i would have done if she hadn't been there praying every step of the way," Wieler said.
 
Jocelynn had four surgeries by the time she was four month's old.
 
"She's got 15 scars to be exact and she's a warrior," Wieler said.
 
Despite the set backs, Wieler says she believes her now seven month old will inspire others.
 
"She's a testimony and how she's just gonna do God's work and God's got a plan for her. And that's what i knew the whole time, even when it looked so dark."

Jocelynn is currently being fed through a tube, but her parents hope by her first birthday she will be eating real food.

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